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Showing posts from July, 2016

Sweet Bowen Lee

"Never in a million years'' were the words that the neurologist used when he met with us yesterday to give us the results from Bowen's MRI. A s most of you know she had an MRI Saturday and we so appreciate all the texts we have received checking on us. Sorry we have not written back yet as we were still processing everything. Long story short, the neurologist has diagnosed our sweet Bowen with  ''Hemimegalencephaly" (I still can't pronounce it either so let's just say HME for short). Now try to stay off Google....here is the rundown: It is a rare (really really rare) neurological condition/brain disorder. Her neurologist has been practicing for 30 plus years and has only seen 3 prior cases. One half of the brain (the right hemisphere in Bowen’s case) is abnormally large (i.e. developmentally different). This was NOT something anyone did (believe me I asked..did I eat something wrong? Do the wrong things?). She had this before she was b